ORIGIN STORIES

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2022-01-03T00:27:22+00:00

Lynn

get yourself referred to a Dermatologist who has experience treating HS.  There are many more treatments available now compared to when I was first diagnosed and a Dermatologist can tell you about them. Have faith and work with them through this. 

2022-01-03T00:27:02+00:00

Rounak

you didn't choose to have it so you also don't need to hide it. We are Warriors and if we deal with this pain on the daily, then there's nothing that can stop us!

2022-01-03T00:26:16+00:00

Nelson

Keep educating yourself on this condition and try every way that you can to make your life worth living. 

2022-01-03T00:25:10+00:00

Athena

At first, I had a really hard time opening up to people about my HS. I didn’t know how to describe it and I was terrified of judgment. Once I worked up the nerve, the response I received was amazing

2022-01-03T00:24:45+00:00

Donna

I was thirty-nine and had just had my fifth child when my HS symptoms first appeared.

2022-01-03T00:24:02+00:00

Julie

I have discussed my HS with all the people close to me. After thirty-three years, it is hard to hide it.

2022-01-03T00:19:08+00:00

Alexis

My main way of trying to stay positive is being around the ones I love and talking about any problems I may be having. I’ve discussed my condition with quite a few people. The reason I do it is because I know that discussing my situation could help someone else and/or spread awareness.

2022-01-03T00:17:01+00:00

Heather

I have always found writing to be very therapeutic and for that reason, I am drawn to it. It helped me to make sense of the many deep-rooted emotions I was feeling about HS. I wrote a book about my inner journey while I was going through it.