Your First Name (required)
Your Age (optional)
What gender do you identify as?
Where do you currently live? (City/Province/State)
At what age did your HS symptoms first appear? What was your initial reaction, and did you seek medical attention?
How long did it take to get your official HS diagnosis? What kind of Doctor diagnosed you?
HS has 3 stages of severity. Do you know which stage you have?
Do you have any other medical conditions in addition to HS?
What does your current treatment plan for HS look like? Did anything change in the treatment/management of your HS after being properly diagnosed? If you do not currently have a treatment plan, please explain why.
What areas of your life (career, family, overall health, hobbies, etc.) has living with HS impacted the most?
How do you try to stay positive while dealing with the negative feelings often associated with HS? (Ask for support on a forum or from a loved one, therapy, go for a walk, watch a movie etc.)
Have you discussed your condition with the people around you (family, friends, co-workers)? What was their response and did it surprise you? If you have not yet opened up to anyone, what is preventing you from doing so?
Do you have your own “Hero" in your life who helps you get through the extra hard days? How has this person made a difference in your situation?
Are there any tips or tricks that you use to help manage your HS that you think might be helpful to other Heroes living with HS?
Have you had any positive experiences related to your HS? (With physicians, other patients, family etc.)
If you could say anything to an HS Hero who is struggling, or a newly diagnosed HS patient, what would you tell them?
Upload a picture/selfie to go with your story (optional)
Your Email (required)