HS Heroes (HSH) is a volunteer run, registered, Not-for-profit organization. We are a community and resource for people living with Hidradenitis Suppurativa (HS). HSH is dedicated to Education, Awareness, and Advocacy for;
- Those currently diagnosed
- Those who don’t yet have a diagnosis
- Those who don’t have the illness but are caregivers, friends, or relatives of those who suffer
- Health care professionals
HS Heroes is a place where you feel a sense of belonging, a community of resilience, courage, strength, and hope, and a place to find camaraderie in our shared experiences.
EDUCATION: We hope to help our community develop skills to self manage their illness through accessible information. We want to give undiagnosed or newly diagnosed patients the tools to speak to their doctor confidently about their treatment options. We want to provide a safe place where patients and those who support them can share their experiences and find answers directly from people living with and managing HS.
AWARENESS: We, at HS Heroes, engage and bring awareness to the community through; our social media platforms, online educational webinars featuring medical professionals, obtaining Canadian proclamations declaring the first week of June Hidradenitis Suppurativa Awareness Week, and the annual #walking4HS Awareness events across Canada.
ADVOCACY: We at HS Heroes believe there is strength in numbers. Not only do we advocate for patients rights within our community and country, but we also work with patient groups globally for the benefit of all who are suffering with Hidradenitis Suppurativa. For more information on our current advocacy initiatives you can click here
We chose the name HS Heroes because HS Patients are some of the strongest people we know. They never stop fighting, they never stop looking for the light in the darkness, and they never hesitate to lend fellow sufferers a helping hand. Together #WeAreHSHeroes