ORIGIN STORY – CHARLOTTE

My name is Charlotte and I’m a 42-year-old woman from Mount Pearl, Newfoundland who has HS disease.

I was 12 -years-old when my HS symptoms appeared. I was unsure of how to react at first but ultimately decided to see my family doctor about them. Seven years later, I received the official diagnosis of Hidradenitis Suppurativa from a Dermatologist.  There are 3 stages associated with HS Disease and I have the most severe stage, which is stage 3.  Along with HS, I am diabetic and  have PCOS (Polycystic Ovary Syndrome).

My current treatment plan involves taking a biologic called Stalera every eight weeks, and Doxy when needed. I went through a few different medications and topical creams before finding some success with taking a biologic.

I try very hard not to let HS affect my life. It is easier said than done. When it does affect me, it affects all aspects of my life and I cannot do anything.  I try not to let my HS bring me down but if I do need to deal with some negative feelings I will try talking with friends who support me and who understand what I am going through. I’ve talked to my family, friends and co- workers about my condition and they are all very supportive. 

I’m fortunate because I have 3 Heroes in my boyfriend, my mom and my Dermatologist.  From simply listening to me or treating me, they are there for me.  I have had a few positive experiences related to having HS.  I’ve met a really great group of friends and found a whole new community to talk to and share advice with.  Also, my Dermatologist is a fantastic doctor and I am so thankful for that.  

If I could say anything to an HS Hero who is struggling, I would tell them to keep asking questions, do your research on the disease, and to remember one thing:

You may have HS but it does not have you!