In January 2020 The Canadian Skin Patient Alliance team collaborated with Health Care professionals, and a patient representative to conduct a survey to identify if progress had been made in improving the diagnostic process, and the ongoing care and treatment for HS. 

Click on the links to see the results of those surveys

Scarred for life: https://www.canadianskin.ca/images/Documents/CSPA_Report_March_22_2017_website_final.pdf

Scarred for life: 2020 Update: https://canadianskin.ca/images/HS_Report/CSPA_HS_Report_May_22_2020_Final.pdf