ORIGIN STORIES

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2021-01-05T14:21:02+00:00

Nelson

Keep educating yourself on this condition and try every way that you can to make your life worth living. 

2020-11-17T19:21:16+00:00

Athena

At first, I had a really hard time opening up to people about my HS. I didn’t know how to describe it and I was terrified of judgment. Once I worked up the nerve, the response I received was amazing

2020-11-17T19:18:47+00:00

Donna

I was thirty-nine and had just had my fifth child when my HS symptoms first appeared.

2020-11-17T19:16:49+00:00

Julie

I have discussed my HS with all the people close to me. After thirty-three years, it is hard to hide it.

2020-10-27T02:47:46+00:00

Alexis

My main way of trying to stay positive is being around the ones I love and talking about any problems I may be having. I’ve discussed my condition with quite a few people. The reason I do it is because I know that discussing my situation could help someone else and/or spread awareness.

2021-09-11T14:31:57+00:00

Denise

I have met a lot of wonderful people throughout my journey and have also had the pleasure to help some amazing HS Warriors/Heroes. I have dedicated my life to HS awareness and to helping others who are suffering. I have been an HS advocate for 29 years and an HS patient advocate for 27 years.

2020-10-27T02:49:14+00:00

Heather

I have always found writing to be very therapeutic and for that reason, I am drawn to it. It helped me to make sense of the many deep-rooted emotions I was feeling about HS. I wrote a book about my inner journey while I was going through it.

2020-10-27T02:50:12+00:00

Michael

Even though HS is a horrid disease and I’d never wish it on anyone, it has given me the opportunity to turn pain into purpose, while making friends from across the country and around the world. I’d never want to change that.